Cystic Fibrosis Canada

Cystic Fibrosis Canada

Cystic Fibrosis Canada was founded in 1960 as the national charity dedicated to improving the health and well-being of Canadians living with cystic fibrosis. Kelly Grover serves as President and CEO; the organization is governed by a Board of Directors. The wealth originates from public donations, corporate partnerships, and planned gifts. The organization allocates capital across three principal channels: research funding (six decades of supporting targeted studies), advocacy (improving access to medicine and government resources), and community services (including a national Helpline and regional programming). Confirmed research partnerships include the Canadian Institutes of Health Research (CIHR) for a new global study on lung transplantation and survival in the era of CFTR modulators, announced in 2025. Geographic focus is exclusively Canadian, with offices in Toronto and regional teams across the country; one-dollar amounts by province are not routinely disclosed. Kelly Grover was named President and CEO (year not specified on the site). Total deployment is not publicly disclosed; the organization reports raising funds through events such as the annual Walk To Make Cystic Fibrosis History and the Robbie International Soccer Festival. Secondary vehicles include a Helpline, a Peer Connect program for parents, and a Breathless podcast produced with Snack Labs Inc. May 2025: The organization held its annual Walk To Make Cystic Fibrosis History on May 31, with registration closing May 29. Cystic Fibrosis Canada's structural differentiator is its exclusive national focus on one rare disease — cystic fibrosis — in Canada, combining research funding with direct patient advocacy and community support. Unlike many disease foundations, it operates a dedicated Helpline for non-urgent health questions and emphasizes bilingual (French/English) service across all provinces.